aHUS genetic counselling-evidence based
Some new aHUS Research* was presented at the recent meeting of the International Pediatric Nephrology Association in Venice. A talk by…
Complement database leader interview
Professor Stephen Perkins began his research career having studied Chemistry and Molecular Biophysics at Oxford University as well as undertaking Research…
A well of aHUS mutations
aHUS patients raised the question “ are the predisposing genetic factors of aHUS fully catalogued?” as a topic of research which…
OLYMPUS DIGITAL CAMERA
Fatal non attraction for aHUS
Everyone has heard of magnetism. It is a physical force that attracts two objects together. It surrounds us, The earth is…
A little aHUS Awareness means a lot
As the world slips into September 25th, another aHUS Awareness Day passes. From the aHUS alliance‘s view it was the best…
Historical branches-aHUS in the Family
aHUS is known as a family illness. It was seen as something different from HUS when different family members experienced it…
Transplants, aHUS and eculizumab
The alliance has frequently featured articles about kidney transplants for those with aHUS. It was its top topic identified as a…
The role of Positive Health in the Dutch approach to aHUS
A new definition of Health: "Health as the ability to adapt and self-manage, in light of the physical, emotional and social…
Dialysis Diaries: Long Term Complications
The kidneys are wonder-organs. They do so many different things. They impact so many life-processes. It is impossible for individuals…
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