A little aHUS Awareness means a lot
As the world slips into September 25th, another aHUS Awareness Day passes. From the aHUS alliance‘s view it was the best…
As the world slips into September 25th, another aHUS Awareness Day passes. From the aHUS alliance‘s view it was the best…
aHUS is known as a family illness. It was seen as something different from HUS when different family members experienced it…
The alliance has frequently featured articles about kidney transplants for those with aHUS. It was its top topic identified as a…
A new definition of Health: "Health as the ability to adapt and self-manage, in light of the physical, emotional and social…
The kidneys are wonder-organs. They do so many different things. They impact so many life-processes. It is impossible for individuals…
14 July 2019 Dear Alexion On 1 January 2018 the aHUS alliance wrote an open letter to you ( click…
Atypical HUS patients who have progressed to kidney failure and do not have access to a complement inhibitor like Eculizumab have…
Cemdisiran has been a possible candidate drug for aHUS for some time. Alnylam the pharmaceutical company responsible for its development, withdrew…
The aHUS alliance has a long association with the Global aHUS Registry and has a place on its Scientific Advisory Board…