ERKNET’s website hosts a programme of webinars ( live talks over the internet) about Rare Renal Diseases . The talk today was given by Professor Marius Miglinas , Head of Nephrology Centre at Vilnius University Hospital. Vilnius is the Capital City of Latvia.
His talk is entitled “ Spectrum of Complement- Mediated Thrombotic Microangiopathies after Kidney transplantation”
“Complement – mediated TMA” being a new name for aHUS.Kidney transplant with or without Complement inhibitors being the top research topic chosen by the aHUS alliance. aHUS dialysis patients are a discriminated against cohort in many counties, even those with access to eculizumab, and are often being left behind.
The alliance registered to listen to what Prof. Miglinas had to say.
The following observations were made from the talk.
A very fast paced ,demanding and clear talk about this complex subject.
The risks need understanding and may not be as great as thought. Different eculizumab treatment strategies to fit the risks could make use of eculizumab in a lot more cost effective way and for the alliance this could influence health funding decisions accordingly.
ERKNET record these webinars and then provide access to both an audio file of ,and the set of slides used in, the talk. A link to this webinar can be found at September 19 using by clicking here.
The next webinar relating to HUS is on 13th Novemeber and will feature Prof. Guiseppe Remuzzi presenting “Unraveling the pathophysiology of HUS in the light of recent discoveries on complement activation”.