Article No. 453 25 August 2021 Recently Astra Zeneca concluded its purchase of the rare disease business unit, Alexion. $39 billion dollars was paid. Those stakeholders who risked their investment…
Article No 441 18 June 2021 What topics and questions are likely to frame conversations about treating patients who have atypical HUS? Since aHUS diagnosis begins with ruling…
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Article No. 432 7 May 2021 In the past week or so, the possible trial of a new technology for treating aHUS, that we reported on in website article No…
Atypical HUS Relapse -The Ties that Bind, the third in our original series about aHUS as a lifelong challenge faced by families with a history of this rare disease.
Article No. 375 6 September 2020 Earlier this year, aHUS alliance Global Action wrote to a number of contacts it has around the world. Some information was sought about access…
Article No 366 4 August 2020 An aHUS ROW (Rest of the World) update : Spotlight on aHUS Norway There are many wonderful aHUS associations around the world…
Article No 353 27 June 2020 Participants in the creation of a Global aHUS Patients’ Vision advocated that treatment of aHUS everywhere was needed ( See article HERE ). Everywhere…