Atypical HUS - RESOURCES About aHUS - General Info Info Centre Know aHUS: Know US aHUS PRESS KIT Image Gallery: Atypical HUS info & advocacy Atypical HUS 1.0 - to…
Cleveland Clinic Children’s held its Rare Genetic Disease Symposium on 12 Sept 2019, with 3 aHUS-specific presentations to include the aHUS Alliance on the topic of ‘The Patients’ Perspective’.
When the six European national aHUS organisations gathered in February 2013 for the first meeting of what was to become the aHUS alliance, they listed several aspirations for the new organisation.…
The aHUS alliance’s mission highlights the importance of patient organisations reaching out and connecting with and supporting aHUS clinical researchers, who in turn may reciprocate. The pages of this website reflects…
The aHUS alliance global action is an incorporated charitable organisation registered with the Charities Commission in the UK. It has to comply with reporting rules and each year a report…
Another year has ended for those affected by aHUS. For some sadly it would have proven to have been their last. For others it has been the beginning of the…
Adding value in patient advocacy is obvious. Or is it? Those involved in patient advocacy constantly ask themselves “Am I achieving anything?” . They know they are doing things, but…
It is 12 days to Christmas and soon more time will become available to relax and unwind, so why not do the opposite and take the ChristmaHUS Quiz challenge ?…