Participants in the creation of a Global aHUS Patients’ Vision advocated that treatment of aHUS everywhere was needed ( See article HERE ). Everywhere is Global.
The aHUS alliance Global Action supports the aHUS Global community everywhere through the collective aHUS patient advocates around the world. It is not limited by national boundaries, just as aHUS is not.
Whilst much aHUS Global Action information Is generic and applicable to all, over the past four years it has featured articles about, or written by people from and in the language of, specific countries. International aHUS insights.
A quick search of the articles reveals examples from 21 specific countries. Well, actually 20 countries plus one featuring Global Action’s own, Kamal, speaking about aHUS at the United Nations. Those countries are listed below with a link to one related article ( for some there maybe several articles)
Along with the articles above, aHUS alliance’s videos have been featured which include aHUS participants from other countries. aHUS Global Action’s website includes links to many national organisations around the world as well as a list of eminent aHUS clinicians and researchers from around the world.
Plenty of evidence therefore that aHUS alliance Global Action is living up to its name and truly playing its part in Global aHUS Advocacy .