Atypical HUS – RESOURCES

Atypical HUS - RESOURCES About aHUS - General Info Info Centre  Know aHUS:  Know US aHUS PRESS KIT Image Gallery:  Atypical HUS info & advocacy Atypical HUS 1.0 - to…

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2019 aHUS Awareness Day -24 Sept

24 September 2019 marks the 5th annual aHUS Awareness Day, created by the aHUS Alliance to raise visibility for issues and needs of those impacted by the rare disease atypical hemolytic uremic syndrome (atypical HUS or aHUS). ‘Family and Community Support’ is this year’s theme, with a 2019 global Call to Action: Support for blood & organ donation.

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OMS721: Omeros Research Collaboration with University of Cambridge

Pharma News: an Atypical HUS update from the aHUS Alliance. In its 11 December 2018 press release, the Omeros Corporation announced a new collaboration with a UK university to create the Omeros Center at Cambridge for Complement and Inflammation Research (OC3IR). Focus of the OC3IR will be research into OMS721 and OMS906, but how will it engage other aHUS stakeholders interested in OMS721 clinical trials and atypical HUS advancements in research?

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Atypical HUS Fact Sheets – Sept 2018 Editions

Atypical HUS Fact Sheets (released Sept 2018) provide aHUS -specific research and info about the rare disease atypical Hemolytic Uremic Syndrome or aHUS. Available in 2 formats: an ‘In Brief’ print friendly pdf, and a full length version (17 page) with links to current atypical HUS research (with citations) and key topics of interest to physicians, aHUS patients, and their families.

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Atypical HUS & School

Atypical HUS and School: Information about teaching & learning. Learners of any age may be affected by chronic illness or a rare disease like aHUS. What schools and employers should know about people living with atypical hemolytic uremic syndrome (aHUS)

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