The 7th annual aHUS Awareness Day will be marked on 24 September 2021. Created by the aHUS Alliance in 2015 to raise awareness about this life-threatening rare disease, the theme for this year’s aHUS Day is ‘United in Advocacy’. Details the 2021 global campaign to raising awareness of atypical HUS.
ARGENTINA SHUA Facebook AUSTRALIA AHUS PATIENT SUPPORT GROUP Globe Facebook Twitter BELGIUM AIRG-BELGIQUE Facebook BRAZIL BRAZILIAN AHUS & TMA STUDY GROUP Globe Facebook BULGARIA Facebook CANADA AHUS CANADA Globe Facebook…
Article No. 440 11 June 2021 Sometimes aHUS alliances Global Action sees things written about aHUS on the internet which are not clear or wrong. Unintentionally misinforming or misleading. Seldom…
Article No. 438 1 June 2021 One of six pillars of hope for those with a rare disease, is having a patient registry for their disease. The vast majority of…
Kidney Disease & Dental Health – aHUS Alliance Global Action looks at common topics for oral health and dental care, and provides an overview of what issue might be different or need special attention for people with kidney disease. A resource list is provided FMI.
Article No. 433 9 May 2021 Each day there are tweets about aHUS on Twitter. Mostly clinicians informing clinicians about new articles on the subject. Recently two tweets were noticed…
Article No. 429 23 April 2021 The aHUS alliance reputation for its 360 degree view of the rare disease aHUS continues to grow. Support of international aHUS researchers is built…
OUR PURPOSE Working together so that good will come to aHUS patients and their families everywhere.At aHUS alliance Global Action, we have no doubt that the aHUS insights we give…