aHUS Patient Fatigue

Article No. 354 4 July 2020   Earlier this year aHUS Global Action published a major four part report  (see HERE) on the importance of patient reported outcome data in…

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Global aHUS advocacy

Article No 353 27 June 2020 Participants in the creation of a Global aHUS Patients’ Vision advocated that treatment of aHUS everywhere was needed ( See article HERE ). Everywhere…

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aHUS in Deutschland

Article No. 349 14 June 2020 Die aHUS Global Action-Website hat mehrere nicht englische Artikel über aHUS aus der ganzen Welt veröffentlicht. Als einzige Gobal-Website über aHUS möchten wir mehr…

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An aHUS quiz

Article No 344 13 May 2020   A short COVID-19  free quiz about aHUS related stuff. Who can get get 20 out of 20? 1.       What are the names of…

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Transcript: aHUS & COVID-19 Webinar

Article No. 341 27 April 2020 When news about the rare disease ‘atypical hemolytic uremic syndrome’ (atypical HUS) appears in medical journals or social media, the aHUS Alliance seeks to…

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