aHUS Patient Fatigue
Article No. 354 4 July 2020 Earlier this year aHUS Global Action published a major four part report (see HERE) on the importance of patient reported outcome data in…
Article No. 354 4 July 2020 Earlier this year aHUS Global Action published a major four part report (see HERE) on the importance of patient reported outcome data in…
Article No 353 27 June 2020 Participants in the creation of a Global aHUS Patients’ Vision advocated that treatment of aHUS everywhere was needed ( See article HERE ). Everywhere…
Atypical HUS: Research & Drug Development Landscape 2020 As the year 2020 continues to be shaped in terms of ‘The Year of COVID-19’, research related to the pandemic…
Article No. 349 14 June 2020 Die aHUS Global Action-Website hat mehrere nicht englische Artikel über aHUS aus der ganzen Welt veröffentlicht. Als einzige Gobal-Website über aHUS möchten wir mehr…
Article No 344 13 May 2020 A short COVID-19 free quiz about aHUS related stuff. Who can get get 20 out of 20? 1. What are the names of…
Article 343 8 May 2020 When the COVID-19 pandemic becomes history, as it will be one day ,those remembering it will do so through their own perception of what happened.…
Article No. 342 6 May 2020 Thrombotic Microangiopathy & Precision Medicine What’s to be learned from the Pandemic? At various times in history, medical science has been catapulted…
Article No. 341 27 April 2020 When news about the rare disease ‘atypical hemolytic uremic syndrome’ (atypical HUS) appears in medical journals or social media, the aHUS Alliance seeks to…