Here is a most unusual clinical article from earlier this year. In Thrombotic microangiopathies : An Illustrated review the Abou-Ismail Group explain TMAs using a series of illustrated images ,…
Global Action featured a new trial for an aHUS treatment iptacopan earlier this year ( CLICK ON IMAGE BELOW) aHUS Trial Watch 15 (Iptacopan) Iptacopan is a complement inhibitor that…
The 8th international aHUS Awareness Day will occur on 24 September 2022, with this year’s theme as ‘Awareness through Togetherness’. We’re pleased to announce this year’s aHUS Day campaign and…
Whether it's general information about atypical HUS presented visually or advocacy issues, images about this rare disease help to inform and to provide insight into what matters to the global…
It’s been quite an unsettling end to the first half of 2022 within the atypical HUS community, as July 2022 has begun with an amalgam of issues centered on aHUS…
Today it can be announced that a Global aHUS Community Advisory Board (CAB) has been formed. What is a Community Advisory Board, or CAB ? Well, it is a formal…
Long term aHUS disease, diagnosis and treatment legacies on both physical and mental health have featured in two aHUS Patient Research Agenda topics. The damage to the body during an…
When Jeff, the producer of these awareness day videos, suggested that "questions" should be the theme of this years' RDD Video I was surprised. Surprised because it had been five…