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Atypical HUS Research: What’s New for Sept 2023?

Atypical HUS research highlights for Sept 2023 – additions to our aHUS-specific research library

The early days of aHUS Research (Before aHUS Endeavours Fade)

Global Action is privileged to present a second article in the series BEFORE aHUS ENDEAVOURS FADE. Celebrating the work of people whose research made a significant difference for aHUS patients.…

aHUS awareness day #9 – images of past days.

It is hard to believe that it is nine years since aHUS alliance came up with the first aHUS Awareness Day on 24 September 2015. And remember the images of…

SHUa ao redor do mundo: Brasil

Temos o prazer de oferecer mais uma em nossa série de “SHUa ao redor do mundo”, onde apresentamos as notícias e opiniões de pacientes em uma nação específica. Como uma…

aHUS Awareness Day 2023 Theme – Capabilities & Possibilities

We’re pleased to announce the theme of ‘Capabilities & Possibilities’ as a focus to mark the 9th annual aHUS Awareness Day on Sunday 24 September 2023. In addition to participation…

Informed about aHUS Patient Involvement

Involving patients in clinical studies design and conduct is ethical (Article 575). Involving patients as subjects of that study is ethically acceptable provided informed consent is sought and attained from…

Mental Wellness: Insights & Resources

Mental Health: Types of Therapy | Ways to Nurture Mental Wellness | Mental Health Toolkit & Resources It’s a casual question people ask all the time, “How’s it going?”…

Before aHUS endeavours fade

There have been moments and events in the past where someone whose endeavours make a significant difference for those who have been diagnosed with aHUS today. This is about one.…