In March each year the nephrology community, supported by the American Journal of Kidney Disease, engages in an educational initiative called nephmadness. It is a serious yet relaxed event. It…
All aHUS patients know that when on complement inhibitor treatment they are at risk of meningococcal infection. Do they? Of course, they are told about it before they get treatment.…
I know it should not matter so much but whenever I see incidence and prevalence figures for aHUS in articles etc, it often “does my head in”. Quite some confusion…
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This time last year a couple of dozen people with an interest in global aHUS advocacy were discussing and deciding on the creation of a Community Advisory Board for aHUS.…
Sometimes there are fascinating articles related to atypical HUS which people might miss, and it’s then that it’s particularly helpful to have our aHUS global action team direct our spotlight…
Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening to them healthwise . This is what underpins two…
On February 28, 2023, the world will join together to raise awareness for rare diseases like atypical HUS. Recognized annually on the last day of February, Rare Disease Day encourages…