Hey Global aHUS alliance. Hi, but its aHUS alliance Global Action actually Whatever, let's settle on GA. Well we have been called worse, so OK, what do you want? I…
There are important publications about atypical HUS which people might miss given that key search terms may scan but miss the wide variations in the disease’s name and classification. It’s…
You don't have aHUS any more. Well you have aHUS but not for much longer. And no you won't be cured. You will be a patient with the "DISEASE FORMERLY…
As an aHUS advocate you can often be surprised by events. Nearly three months ago I received an e mail inviting me to attend a conference about Complement Renal Disease.…
What’s new in 2022 regarding expansion in atypical HUS knowledge, and advancements for investigational drugs which may have potential as new aHUS therapeutic treatments? As with most matters, COVID-19 priorities…
Breaking news Breaking News Breaking News Due to unforeseen events the planned Town Hall meetings on aHUS awareness are cancelled. Sorry to disappoint those intending to join in. Something different…
We're so pleased to highlight atypical HUS in New Zealand, with this article written by aHUS family caregiver Anna Benson. No one can better explain the needs and challenges of…
Atypical HUS patients, family caregivers, and aHUS advocates are invited to attend a full day virtual meeting which will be held on Saturday, August 20th, 9:00am to 4:30pm EDT. It…