The long anticipated KDIGO Guidelines from the Controversies Conference held in Florence in September 2022 are now published. The report can be seen in full in Kidney International at this…
A new blood test for aHUS could be a game changer for those who have been diagnosed with aHUS only to be told that no genetic explanation for them having…
Global Action has received this notice from the FDA. We cannot find a price or evidence from an aHUS trial as yet. Some doubts about whether readily available. For Immediate…
Global Action has received this notice from the FDA. Cannot find a price or evidence from an aHUS trial as yet. Some doubts about readily available. For Immediate Release: May 28,…
Continuing the theme of aHUS in verse we looked at different music genre and asked for RAP , Country , Blues and Rock songs about aHUS. Themes of SILENCE ,BURDEN,…
Who are Alois Alzheimer, Cecil Alport, Burrill Crohn, Guillaume Duchenne, James Parkinson and Graham Hughes and what do they have in common? They are names of clinicians whose research to…
The aHUS endeavours series continue with an interview with Bill and Cheryl Biermann whose family was affected by aHUS at the turn of the century. Whilst coping with a family…
During December and January last, there has been a review of each of the 15 topics in the patients research agenda. Many of the topics were included in the first…