Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?
Article No 306 20 December 2019 If you have genetic mutations in your Complement and/or in related components in your blood which cross talk and hamper Complement’s ability to regulate…
Article No. 303 11 December 2019 It has taken nearly a century for aHUS nomenclature to reach the level acceptance, application and awareness it has today. But now there are…
Article No. 296 13 November 2019 A while back, a blog was published on this website titled “A rose by any other name ...what’s the fuss ?”. It had…
Kidney Week 2019 is currently in progress. The American Society of Nephrology’s annual event is being held in Washington DC and is attended by delegates from around the World. A…
2019 aHUS Awareness Day, an overview of the 5th annual 24 Sept campaign to raise awareness for the ultra rare disease atypical HUS.
As the world slips into September 25th, another aHUS Awareness Day passes. From the aHUS alliance‘s view it was the best ever and there is a lot to reflect on.…
Atypical HUS: Fact Sheets & Research (2019 – SEPT – 2020 Edition) The aHUS Alliance provides informational resources about this rare disease for aHUS families & advocates around the world. Highlight boxes of aHUS research from the past year are provided in the full version, Key Facts and Research. The ‘aHUS: In Brief 2019’ version is a single page of aHUS facts to Print & Share.