Last month the aHUS alliance in partnership with Andrew Siedlecki , the USA National Coordinator for the aHUS Registry and other eminent clinicians from the Boston hospitals held a symposium…
Post-Event Update:Presentations were videotaped, and appear on ourAtypical HUS Clinical Channel as the key asset of 2017 aHUS Awareness Day (24 Sept).Our sincere thanks to all participants & attendees at…
Earlier this year the website featured an article ( click here )about the nomenclature used to described aHUS. Clinical articles now feature many terms to describe differences in what was…
Post-Event Update: Presentations were videotaped, and appear on YouTube on the aHUS Alliance Atypical HUS Clinical Channel . (These were the key assets for aHUS Awareness Day:…
It is nearly 102 years since the death of Paul Ehrlich."So what? " you might say. But it was Ehrlich who gave the name "Complement" to the part of the…
Like many with rare diseases getting a diagnosis is a major issue for aHUS patients. Although it is much speedier than it used to be , getting a diagnosis is…
Skin involvement and thrombotic microangipathy: a consideration for atypical HUS patient care.
The Rare Disease Day video provided an opportunity for aHUS patients around the world to voice what aHUS research was needed , and, in this unique way, brought an extensive…