TMAs -How many are there?
The Primary aHUS community now understands that there is no accurate record of how many "aHUS" patients there are , but what about the number of people who have had…
Continue Reading
TMAs -How many are there?
aHUS pioneers – Named it, Explained it, Treated it,
What follows is an imagined "dinner party conversation" about atypical hemolytic uremic syndrome (aHUS) among aHUS pioneers—Professor Conrad von Gasser, Professor Tim Goodship, Dr. Lenny Bell. With the author also…
Continue Reading
aHUS pioneers – Named it, Explained it, Treated it,
Familial Impact – RDD 25 video insights
The second part about the insights arising from the RDD25 aHUS video is about the rare disease familial impact. (Note: Part 1 link HERE.) How does it impact and on…
Continue Reading
Familial Impact – RDD 25 video insights
All is quiet on the aHUS naming front
For several years now the naming of our disease has been discussed and new names proposed but nothing official has yet happened to it. It is six months since a…
Continue Reading
All is quiet on the aHUS naming front
aHUS on rare disease day 2025
This is what Grok AI says about aHUS alliance efforts have been to promote Rare Disease Day 2025 awreness, 1. **Video Project Launch**: The aHUS Alliance Global Action team launched…
Continue Reading
aHUS on rare disease day 2025
Atypical HUS Research: Feb 2025 Roundup
Since its inception in 2008, and celebrated annually on the last day of February, world Rare Disease Day has been an opportunity to provide information and advocacy for and about…
Continue Reading
Atypical HUS Research: Feb 2025 Roundup
Coronavirus remains a Concern in 2025
It’s largely wishful thinking that an illness can become ‘extinct’ across the human population, as evidenced by the resurgence of diseases like polio and the mumps. Smallpox, a highly contagious…
Continue Reading
Coronavirus remains a Concern in 2025
Coronavirus remains a Concern in 2025
It’s largely wishful thinking that an illness can become ‘extinct’ across the human population, as evidenced by the resurgence of diseases like polio and the mumps. Smallpox, a highly contagious…
Continue Reading
Coronavirus remains a Concern in 2025