The American Society of Nephrologists meeting is due to be held on 15 to 20th of November in Chicago.
aHUS alliance had a representative at last year’s meeting in San Diego and an account of the experience can be read here
One the points made in the report was whether a patient organisation abstract would feature well in the “clinical” poster display area.
Well one nearly made it for Kidney Week 2016, although not displayed it was selected to be included in the JASN Supplement at item PUB332.
The abstract was about what aHUS patients regard as the priority for aHUS Research and it describes the way in which aHUS alliance affiliates produced a priority list from a patients perspective. The first patients’ research agenda in effect.
Another issue which emerged from the range of talks in which aHUS/Complement/TMA featured was how in getting an aHUS diagnosis it was important to :
