aHUS Awareness Day & Rare Disease Day
Articles: News & Views
Is there a PDA for aHUS treatment continuation?
A PDA or patient decision aid is becoming an important part of the increasing shared…
Registries for the rare disease aHUS
Global Action has more than any other organisation promoted the research registries that exist for…
PNH Ve aHÜS İle Mücadele Derneği̇n’den Haberler
PNH VE aHÜS İLE MÜCADELE DERNEĞİN’DEN HABERLER Derneğimiz tarafında ilk defa gerçekleştirilen toplantı organizasyonu, İstanbulÜniversitesi…
Our Mission
Statement
The aHUS alliance, through the collaboration of its affiliates will promote global awareness of aHUS, will work with international aHUS researchers and, by supporting newly emerging national aHUS patient groups, will bring relief and support to those affected by aHUS to save, and improve the quality of, more lives.
Support aHUS Alliance Action
You can support this trust of only volunteers in our quest to support aHUS patients and their family worldwide by making a donation through Paypal
