aHUS & COVID-19: WEBINAR 24 March 2020

 

The aHUS Alliance wishes to alert atypical HUS patients and family caregivers to the following public invitation to a 24 March webinar on the topic of aHUS and COVID-19 (coronavirus).

Note:  The aHUS Alliance is an umbrella group of patient organizations and advocates in over 30 nations. We amplify patient voices and issues related to the rare disease atypical HUS, and highlight aHUS news & events around the world.

 

30 March 2020 UPDATE:  Archived VIDEO Available 

Click Webinar Title Card Image Below

 

Announced by Alexion Pharmaceuticals:

Alexion is pleased to provide a free global webinar for aHUS patients, to help provide a forum for answering questions about COVID-19 for people living with aHUS. The webinar will be hosted in English, and will take place on Tuesday, March 24, at 3 pm Eastern Daylight Time / 8 pm Central European Time. The global webinar will feature six aHUS experts:

  • Gema Ariceta, MD, Spain (pediatric nephrologist)
  • David Cohen, MD, USA (adult nephrologist)
  • Nicole Isbel, MD, Australia (adult nephrologist)
  • Christoph Licht, MD, Canada (pediatric nephrologist)
  • Eric Rondeau, MD, France (adult nephrologist)
  • Marie Scully, MD, United Kingdom (hematologist)

This expert panel will review current information related to COVID-19 and answer your questions. You are encouraged to submit your questions ahead of time to jeff@ahusallianceaction.org.

To attend the webinar, please go to https://alexion.zoom.us/j/681870659.

Please note: Although Alexion is providing technical support to enable this program, Alexion is not influencing or controlling the content. Rather, these independent experts will be giving their personal points of view, based on their medical training and expertise.

 

 

 

Post Webinar Updates

 

Click the title care or links below to watch the Video of this Webinar.

Vimeo Video Link: bit.ly/aHUS24Mar2020webinar

Watch It:  COVID-19 and aHUS

 

Looking for transcript of this webinar?

 

Click to download a pdf TRANSCRIPT of this webinar

aHUS & COVID19, Webinar TRANSCRIPT 24 Mar 2020

Courtesy of the Global HUS Registry SAB (permission granted by Dr C Licht)

 

Atypical HUS families and the aHUS Alliance sincerely and deeply thank the Scientific Advisory Board (SAB) of the aHUS Global Registry for their generosity of time & effort to provide information and answers regarding aHUS and COVID-19.  We appreciate the IT support from Alexion that made this international webinar possible.

 

Updated 30 Apr 2020