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Alexion

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Read more about the article 2020 Atypical Drug Discovery Review, released by the aHUS Alliance

2020 Atypical Drug Discovery Review, released by the aHUS Alliance

  • Post author:ahusalliance
  • Post published:June 24, 2020
  • Post category:Uncategorized
  • Post comments:0 Comments

2020 overview of atypical HUS therapeutic drug development, by the aHUS Alliance

Continue Reading2020 Atypical Drug Discovery Review, released by the aHUS Alliance
Read more about the article aHUS & COVID-19: WEBINAR 24 March 2020

aHUS & COVID-19: WEBINAR 24 March 2020

  • Post author:ahusalliance
  • Post published:March 21, 2020
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 334 21 March 2020   The aHUS Alliance wishes to alert atypical HUS patients and family caregivers to the…

Continue ReadingaHUS & COVID-19: WEBINAR 24 March 2020
Read more about the article Global aHUS Registry: What’s it all About?

Global aHUS Registry: What’s it all About?

  • Post author:ahusalliance
  • Post published:January 23, 2020
  • Post category:Uncategorized
  • Post comments:0 Comments

An article on FAQ regarding the aHUS global registry, including information gathered by atypical HUS patient advocates who represent the patient voice at the registry's Scientific Advisory Board meetings.

Continue ReadingGlobal aHUS Registry: What’s it all About?
Read more about the article Where and what next?

Where and what next?

  • Post author:ahusalliance
  • Post published:November 15, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 297 15 November 2019     There is a saying in “management theory” that in the development of a…

Continue ReadingWhere and what next?
Read more about the article Small Molecule Factor D Inhibitors – Right for aHUS?

Small Molecule Factor D Inhibitors – Right for aHUS?

  • Post author:ahusalliance
  • Post published:October 9, 2019
  • Post category:Featured
  • Post comments:0 Comments

Out of more than 7000 rare diseases, only an estimated 5% have an approved treatment or therapy (Rare Disease Day, FAQs).…

Continue ReadingSmall Molecule Factor D Inhibitors – Right for aHUS?
Read more about the article Alexion holds Blood Drive for aHUS Day 2019

Alexion holds Blood Drive for aHUS Day 2019

  • Post author:ahusalliance
  • Post published:September 22, 2019
  • Post category:Featured
  • Post comments:0 Comments

Alexion Pharmaceuticals holds corporate blood donation drive to mark aHUS Awareness Day, 24 Sept 2019.

Continue ReadingAlexion holds Blood Drive for aHUS Day 2019
Read more about the article aHUS Patients have a value beyond the balance sheet

aHUS Patients have a value beyond the balance sheet

  • Post author:ahusalliance
  • Post published:February 6, 2018
  • Post category:Featured
  • Post comments:0 Comments

It was little known, but Alexion decided years ago that it would reinvest 40% of any of its profits from the…

Continue ReadingaHUS Patients have a value beyond the balance sheet
Read more about the article An open letter to Alexion for 2018

An open letter to Alexion for 2018

  • Post author:ahusalliance
  • Post published:January 1, 2018
  • Post category:Featured
  • Post comments:0 Comments

1 January 2018 Dear Alexion As you know aHUS is a life threatening and debilitating condition. You have the only treatment…

Continue ReadingAn open letter to Alexion for 2018
Read more about the article The aHUS Registry Explained (Part 1)

The aHUS Registry Explained (Part 1)

  • Post author:ahusalliance
  • Post published:November 27, 2017
  • Post category:Featured
  • Post comments:0 Comments

From its beginning the aHUS alliance’s website has featured articles about the aHUS Registry and the work it does (click here…

Continue ReadingThe aHUS Registry Explained (Part 1)
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