Again, just how many aHUS patients are there?
Article No. 369 12 August 2020 Recently when preparing an article about USA aHUS patient numbers ( see Article 362 )…
It’s not about My Rare Disease
Support for rare disease patients and their families - what does that look like, and how does it address their needs? The aHUS Alliance looks behind the medical issues of living with a rare disease to focus on the many factors involved with the struggle to live a meaningful life centered on wellness.
aHUS Day 2020: Global Video Project
Article No. 367 8 August 2020 aHUS Awareness Day 2020 is less than 2 months away! The world will join together…
aHUS i Norge (aHUS in Norway )
Article No 366 4 August 2020 An aHUS ROW (Rest of the World) update : Spotlight on aHUS Norway …
aHUS patients on Ravulizumab- we need your help.
Article No. 365 3 August 2020 Please note the study is now complete and that no further contributions are being sought.…
Seeking aHUS genetic knowledge
Article No 364 2 August 2020 Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS…
ERKNet 2020 Update
aHUS Global Action last reported on the ERKNet Registry in January this year ( see article here).At that time the TMA…
USA
GLOBAL AHUS HIGHLIGHTS AND SCIENCE-BASED CONTENT
USA aHUS Patients-2000 or more and rising?
Ask Google " how many aHUS patients are there in the USA?" and you will not get an exact answer. Understandable…
2020 aHUS Awareness Day
Article No. 361 24 July 2020 The world’s 6th annual aHUS Awareness Day, to be held on Thursday 24 September…
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