Transplants, aHUS and eculizumab
The alliance has frequently featured articles about kidney transplants for those with aHUS. It was its top topic identified as a…
The alliance has frequently featured articles about kidney transplants for those with aHUS. It was its top topic identified as a…
The alliance relationship with the atypical Hemolytic-Uremic Syndrome( aHUS) Registry (NCT01522183) is now well into its fifth year. This observational non…
Following on from its recent article about the safety of eculizumab ( see here ) the alliance has looked at two…
Within the aHUS Patients' Research Agenda is a topic about how aHUS affects work and school. A big question with so…
2019 aHUS Awareness Day - Atypical HUS families around the world are invited to participate in this aHUS Alliance outreach & advocacy project for 24 September. Slideshow project details for patients and caregivers affected by the rare disease aHUS.
A new definition of Health: "Health as the ability to adapt and self-manage, in light of the physical, emotional and social…
The kidneys are wonder-organs. They do so many different things. They impact so many life-processes. It is impossible for individuals…
14 July 2019 Dear Alexion On 1 January 2018 the aHUS alliance wrote an open letter to you ( click…
Atypical HUS patients who have progressed to kidney failure and do not have access to a complement inhibitor like Eculizumab have…