aHUS Day 2021 – Global Atypical HUS Project


It’s that time of year again – aHUS Awareness Day 2021 is 2 months away! The world will join together on September 24, 2021 to raise awareness for the rare disease atypical HUS (atypical hemolytic uremic syndrome, or aHUS). The first aHUS Awareness Day was on September 24, 2015 and was started by the aHUS Alliance.

This is our 7th time celebrating, and you can find resources & learn more about the this year’s 24 Sept campaign by clicking HERE.

This year’s theme is “United in Advocacy”. Just like years past, the aHUS Alliance is inviting our global aHUS community to join in the “celebration” of aHUS Awareness Day by participating in a video project. For this year’s project, we are asking you to tell us what being “United in Fighting aHUS” means to you.

We welcome ALL those affected by aHUS from our global community to join in this project. To participate, send in:

– Name and where you are from
– 1 photo
– Short message (up to 50 words) explaining what being ‘United” means to you.

From there, we will create a slide (see sample above) that will be included in this year’s video/slideshow. Please start sending in your submissions now so I can post a steady stream of slides leading up to aHUS Awareness Day. This will help us raise awareness of aHUS around the world for the next couple of months!

You can email your submission to Jeff Schmidt at jeff@ahusallianceaction.org

Submissions are due by September 17, 2021 to allow time to put this together, but the earlier you can turn in your entry, the better!

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