The global poll of aHUS patients’ experience
Work began on the global poll of aHUS patients experiences of living with aHUS in early Autumn 2024. The Poll has…
Vision for a 2024 aHUS Global Poll
A poll for the int'l atypical HUS community will launch in 2024, what does advocates envision for key info & comparisons?
Learn with USTMA – aHUS Videos
The United States Thrombotic Microangiopathy (USTMA) Consortium was formed in 2014 as a collaborative initiative to organize research efforts in the…
Atypical HUS PROs: Patient Reported Outcomes
What are patient reported outcomes (PROS)? The aHUS Alliance Global Action team look at PROs and their importance in the aHUS space.
Advocacy punching above its aHUS weight
There is so much chat these days about what things should be like after the pandemic. Though it does seem at…
aHUS Day 2021 – Global Atypical HUS Project
24 Sept 2021 will mark the 7th aHUS Awareness Day. Learn more about the 2021 aHUS day project to showcase global patient experiences.
Help needed to join the aHUS dots
Article No 395 25 November 2020 This was a call to action to the Global aHUS community.( Results to come) It…
aHUS Day 2020: Global Video Project
Article No. 367 8 August 2020 aHUS Awareness Day 2020 is less than 2 months away! The world will join together…