Rare Disease Day: Atypical HUS in 2020
Article No. 302 7 December 2019 Rare Disease Day Looking Ahead: What Atypical HUS Community Sees for 2020 …
Article No. 302 7 December 2019 Rare Disease Day Looking Ahead: What Atypical HUS Community Sees for 2020 …
Article No. 301 5 December 2019 Within the six pillars of support for those with rare diseases is a…
Article No 300 4 December 2019 In Part 1 the 95 year journey for aHUS to become in common use…
Article No. 299 1 December 2019 Currently some challenge is taking place on the terms used to describe diseases in which…
Article No. 298 18 November 2019 A change is coming in the relationship between patients/ patient organisations and Pharma. This change…
Article No. 297 15 November 2019 There is a saying in “management theory” that in the development of a…
Article No. 296 13 November 2019 A while back, a blog was published on this website titled “A rose by…
Article No. 295 9 November 2019 Genetics are important when it comes to aHUS. Yet genetics does not feature in the…
Kidney Week 2019 is currently in progress. The American Society of Nephrology’s annual event is being held in Washington DC and…