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Read more about the article aHUS project for Rare Disease Day 2020

aHUS project for Rare Disease Day 2020

  • Post author:ahusalliance
  • Post published:January 2, 2020
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?

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Read more about the article 2019 more answers to questions

2019 more answers to questions

  • Post author:ahusalliance
  • Post published:December 20, 2019
  • Post category:Featured
  • Post comments:0 Comments

Article No 306 20 December 2019 If you have genetic mutations in your Complement and/or  in related components in your blood…

Continue Reading2019 more answers to questions
Read more about the article Jules Bordet’s “Alexine”

Jules Bordet’s “Alexine”

  • Post author:ahusalliance
  • Post published:December 18, 2019
  • Post category:Featured
  • Post comments:0 Comments

Article No. 305 18 December 2019   Before 2019 comes to a close the opportunity is taken to acknowledge the work…

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Read more about the article An aHUS tale from Slovakia

An aHUS tale from Slovakia

  • Post author:ahusalliance
  • Post published:December 12, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 304 12 December 2019 The alliance received a copy of an aHUS story from Slovakia. There are are unlikely…

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Read more about the article aHUS is its end really nigh? (3)

aHUS is its end really nigh? (3)

  • Post author:ahusalliance
  • Post published:December 11, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 303 11 December 2019 It has taken nearly a century for aHUS nomenclature to reach the level acceptance, application…

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Read more about the article Rare Disease Day:  Atypical HUS in 2020

Rare Disease Day:  Atypical HUS in 2020

  • Post author:ahusalliance
  • Post published:December 7, 2019
  • Post category:Uncategorized
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Article No. 302 7 December 2019     Rare Disease Day Looking Ahead:  What Atypical HUS Community Sees for 2020  …

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Read more about the article aHUS Expert Centre- what makes it so

aHUS Expert Centre- what makes it so

  • Post author:ahusalliance
  • Post published:December 5, 2019
  • Post category:Uncategorized
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Article No. 301 5 December 2019     Within the six pillars of support for those with rare diseases is a…

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Read more about the article aHUS is its end really nigh? (2)

aHUS is its end really nigh? (2)

  • Post author:ahusalliance
  • Post published:December 4, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No 300 4 December 2019   In Part 1 the 95 year journey for aHUS to become  in common use…

Continue ReadingaHUS is its end really nigh? (2)
Read more about the article aHUS is its end really nigh? (Part 1)

aHUS is its end really nigh? (Part 1)

  • Post author:ahusalliance
  • Post published:December 1, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 299 1 December 2019 Currently some challenge is taking place on the terms used to describe diseases in which…

Continue ReadingaHUS is its end really nigh? (Part 1)
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