aHUS project for Rare Disease Day 2020
Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?
Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?
Article No 306 20 December 2019 If you have genetic mutations in your Complement and/or in related components in your blood…
Article No. 305 18 December 2019 Before 2019 comes to a close the opportunity is taken to acknowledge the work…
Article No. 304 12 December 2019 The alliance received a copy of an aHUS story from Slovakia. There are are unlikely…
Article No. 303 11 December 2019 It has taken nearly a century for aHUS nomenclature to reach the level acceptance, application…
Article No. 302 7 December 2019 Rare Disease Day Looking Ahead: What Atypical HUS Community Sees for 2020 …
Article No. 301 5 December 2019 Within the six pillars of support for those with rare diseases is a…
Article No 300 4 December 2019 In Part 1 the 95 year journey for aHUS to become in common use…
Article No. 299 1 December 2019 Currently some challenge is taking place on the terms used to describe diseases in which…