A well of aHUS mutations
aHUS patients raised the question “ are the predisposing genetic factors of aHUS fully catalogued?” as a topic of research which…
OLYMPUS DIGITAL CAMERA
Fatal non attraction for aHUS
Everyone has heard of magnetism. It is a physical force that attracts two objects together. It surrounds us, The earth is…
10/18/19- FDA DECIDES
Today is significant for everyone with aHUS. Today the US Food & Drugs Administration ( FDA ) announced its decision on…
Small Molecule Factor D Inhibitors – Right for aHUS?
Out of more than 7000 rare diseases, only an estimated 5% have an approved treatment or therapy (Rare Disease Day, FAQs).…
The right choice -Pregnancy and aHUS
It is reckoned that 1 in 25000 pregnancies are complicated by thrombotic microangiopathy (TMA). That is 40 in a million pregnancies.…
aHUS Day 2019
2019 aHUS Awareness Day, an overview of the 5th annual 24 Sept campaign to raise awareness for the ultra rare disease atypical HUS.
A little aHUS Awareness means a lot
As the world slips into September 25th, another aHUS Awareness Day passes. From the aHUS alliance‘s view it was the best…
Awareness of the aHUS Family
Families are important . Families are important to those affected by aHUS. aHUS is a familial Disease. Families are important for…
Alexion holds Blood Drive for aHUS Day 2019
Alexion Pharmaceuticals holds corporate blood donation drive to mark aHUS Awareness Day, 24 Sept 2019.
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