Can the price of eculizumab be justified?
Article No. 4 March 2017 ( See also article on affordability of Ravulizumab at this LINK ) Severine of…
Treatment for all with aHUS?
A question which featured a number of times in the Rare Disease Day video was about access to complement inhibitors for…
A cure for aHUS?
There is another very good question from Hyde Talbot of Cumming Georgia in the video ( click here to view…
THE aHUS PATIENT RESEARCH AGENDA 2017
The Rare Disease Day video, which was the latest collaboration project of the aHUS alliance, and in which 75 aHUS adults…
Just how many aHUS patients are there?
Rare Disease Day 2017 is over , the aHUS Global Video ( see here) was a tremendous success and, as has…
From Russia : Research and Cure!
Today the world will be celebrating the 10th edition of Rare Disease Day. This time, the event's main topic is "Research".…
The aHUS Global Video on Rare Disease Day 2017
It is Rare Disease Day 2017 . The video that the global aHUS community has been contributing to has been released…
The sum of aHUS Research provides better patient outcomes.
aHUS Research is important to the aHUS alliance. In a newsletter from i -ORD , the Indian Organisation for Rare Disease,…
AHUS alliance four years on from Barcelona
On 16 February 2013 representatives from six European aHUS patient organisations met in Barcelona and decided to create an aHUS alliance…
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