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News & Blogs

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Read more about the article Patients as Partners

Patients as Partners

  • Post author:ahusalliance
  • Post published:August 5, 2017
  • Post category:Featured
  • Post comments:0 Comments

Patients are at the heart of healthcare.  Patients are the recipients of medical care, and the participants in research and clinical…

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Read more about the article aHUS Awareness Day 2017 – Global Video Project

aHUS Awareness Day 2017 – Global Video Project

  • Post author:ahusalliance
  • Post published:July 24, 2017
  • Post category:Uncategorized
  • Post comments:0 Comments

        The 3rd international aHUS Awareness Day is just 2 months away. The world will join together on…

Continue ReadingaHUS Awareness Day 2017 – Global Video Project
Read more about the article Complement-mediated TMA awareness- did you know it was aHUS?

Complement-mediated TMA awareness- did you know it was aHUS?

  • Post author:ahusalliance
  • Post published:July 21, 2017
  • Post category:Featured
  • Post comments:0 Comments

Earlier this year the website featured an article ( click here )about the nomenclature used to described aHUS. Clinical articles now…

Continue ReadingComplement-mediated TMA awareness- did you know it was aHUS?
Read more about the article AGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017

AGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017

  • Post author:ahusalliance
  • Post published:July 9, 2017
  • Post category:Featured
  • Post comments:0 Comments

    Post-Event Update:   Presentations were videotaped, and appear on YouTube on the aHUS Alliance Atypical HUS Clinical Channel .…

Continue ReadingAGENDA for TMA & aHUS Symposium in Boston 24 Aug 2017
Read more about the article Genetic testing for all? :Discuss

Genetic testing for all? :Discuss

  • Post author:ahusalliance
  • Post published:July 6, 2017
  • Post category:Featured
  • Post comments:0 Comments

* To have  genetic tests for all aHUS patients and families featured in the Rare Disease Day video ( see here).…

Continue ReadingGenetic testing for all? :Discuss
Read more about the article aHUS patients and the feeling of fatigue

aHUS patients and the feeling of fatigue

  • Post author:ahusalliance
  • Post published:July 3, 2017
  • Post category:Featured
  • Post comments:0 Comments

There were several questions in the Rare Disease Day video about how aHUS patients feel after recovery from  aHUS ( click…

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Read more about the article How Do You Define Wellness if You’re Living with a Rare Disease or Chronic Illness?

How Do You Define Wellness if You’re Living with a Rare Disease or Chronic Illness?

  • Post author:ahusalliance
  • Post published:July 2, 2017
  • Post category:Uncategorized
  • Post comments:0 Comments

    What does the term ‘wellness’ mean if you’re a patient with a very rare disease or chronic illness?  At…

Continue ReadingHow Do You Define Wellness if You’re Living with a Rare Disease or Chronic Illness?
Read more about the article The B of the aHUS Bang ends the Rare Disease Day Video

The B of the aHUS Bang ends the Rare Disease Day Video

  • Post author:ahusalliance
  • Post published:June 27, 2017
  • Post category:Featured
  • Post comments:0 Comments

Rares of Romania asked the question " How can I understand in simple words what is happening in my body during this…

Continue ReadingThe B of the aHUS Bang ends the Rare Disease Day Video
Read more about the article Thrombotic Microangiopathy Symposium in Boston – 24 Aug 2017

Thrombotic Microangiopathy Symposium in Boston – 24 Aug 2017

  • Post author:ahusalliance
  • Post published:June 16, 2017
  • Post category:Uncategorized
  • Post comments:0 Comments

Thrombotic Microangiopathy Symposium: Through the Lens of aHUS 24 August 2017 in Boston     Post-Event Update:   LIVE BLOG:  At…

Continue ReadingThrombotic Microangiopathy Symposium in Boston – 24 Aug 2017
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