Rare Disease Caregivers
Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…
Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…
Current options for kidney failure quite onerous for patients Survival rates not good enough with these treatments Newer options like WAK…
aHUS, or atypical Hemolytic Uremic Syndrome, is what is known to be the illness that affects a very few patients around…
aHUSUK has been the UK’s advocacy organisation for aHUS since September 2011. A registered charity in England Wales and Scotland it,…
Use the following link to see the work of aHUS patients, parents and carers from 17 countries around the world on…
Patients both desire and need to be involved at every level of their healthcare. Within the last decade there’s…
Two key information resources for aHUS Awareness Day 2016 to Connect Inform and Collaborate aHUS Facts - A Brief Look …
The latest aHUS patient organisation to affiliate to the alliance is aHUS Kids Japan. They introduce themselves in their own words…
NEW Information & Updates Available Here's the Latest: Atypical HUS Drug Pipeline – 2017 Update from the aHUS Alliance …