Rare Disease Caregivers
Some countries use the term ‘carer’, while other nations prefer the word ‘caregiver’ to describe those individuals who fill the…
Lab-Grown Kidneys: Are we there yet?
Current options for kidney failure quite onerous for patients Survival rates not good enough with these treatments Newer options like WAK…
A rose by any other name … what’s the fuss?
aHUS, or atypical Hemolytic Uremic Syndrome, is what is known to be the illness that affects a very few patients around…
Meet the aHUS alliance affiliates : ANSWERS FOR aHUS
aHUSUK has been the UK’s advocacy organisation for aHUS since September 2011. A registered charity in England Wales and Scotland it,…
aHUS alliance video for aHUS Awareness Day 2016
Use the following link to see the work of aHUS patients, parents and carers from 17 countries around the world on…
Patient Engagement: A Reality or Merely Buzzwords?
Patients both desire and need to be involved at every level of their healthcare. Within the last decade there’s…
aHUS Awareness Day Fact Sheets for 2016
Two key information resources for aHUS Awareness Day 2016 to Connect Inform and Collaborate aHUS Facts - A Brief Look …
New patient organisation in Japan
The latest aHUS patient organisation to affiliate to the alliance is aHUS Kids Japan. They introduce themselves in their own words…
aHUS Therapeutic Drug Pipeline – More ‘Ones to Watch’
NEW Information & Updates Available Here's the Latest: Atypical HUS Drug Pipeline – 2017 Update from the aHUS Alliance …