An aHUS legacy for Rare Disease Day 2017
On the 28th of this month it will be the tenth annual Rare Disease Day. Rare Disease Day began in 2007…
SHUa en France
Un article sur la SHUa en France figure dans le dernier exemplaire de Nephrogene - le magazine d'AIRG-FRANCE. Écrit par Prof.…
aHUS Clinical Guides in Japan
Led by Hediki Kato of Division of Nephrology and Endocrinology, The University of Tokyo Graduate School of Medicine: a team…
aHUS Treatment in the Developing World
Access to treatment for those in the developing world is a major rare disease issue, The alliance began the year by…
United Nations: aHUS awareness raised by leading developing world aHUS advocate
Last November 11th , Kamal Shah , of aHUS India ,and an affiliate of the aHUS alliance , appeared,by video,at the…
aHUS :Access to treatment-patient engagement-research agenda in 2017
Early in 2017 aHUS alliance has identified access to treatment as a key concern for patients, families, and advocacy groups. Access…
Another anniversary and reason to ring the aHUS bell
Prof. Conrad Von Gasser's cowbell has already been rung by nearly 100 visitors to the website; who also viewed the exclusive…
So is aHUS a rare disease? It is rarer than rare!
Is aHUS a Rare Disease? Good question when Rare Disease Day 2017 is nearly upon us.Well by the definitions of what…
Getting better aHUS treatment in South Korea- the battle has begun
Although only 26 people have been identified in South Korea as being genetically predisposed to aHUS ( given its population the…