A Journey for Life
Another chapter from the Reluctant Advocate From its beginning aHUSUK had not been a fundraiser. We had always told people who…
Another chapter from the Reluctant Advocate From its beginning aHUSUK had not been a fundraiser. We had always told people who…
A big step in the Reluctant Advocate's journey. As previously pointed out aHUSUK outreach was extending due in the main to…
More from the reluctant advocate. The July meeting of NICE left us worried. The meeting had been held on 23rd July…
Another pathway for the reluctant advocate. All aHUS Patients and their families have had their own aHUS experience. When it hit…
As 2014 progressed it was noticeable how much aHUSUK had become aware of other countries and their aHUS challenges and focuses.…
The reluctant advocate journey continues. By 2014 it was not unusual for aHUSUK to get emails from news journalists from newspapers…
The Reluctant Advocate journey continues. aHUSUK formally responded to the Evaluation Consultation Document by 25 March 2014 as requested by NICE.…
By now followers of the Reluctant Advocate will no doubt have grasped the expansion of work that naturally occurs when running…
One mother’s personal story about her young son’s diagnosis with atypical HUS. Connected to the broader themes of what happens after a rare disease diagnosis as working parents strive to navigate, childcare, emotional stress, and family impacts.