aHUS Fatigue it matters to aHUS patients
aHUS is a disease in which oxygen carrying red blood cells are destroyed along with the kidneys too. The latter plays…
The first aHUS awareness day
More about the Reluctant Advocate. The alliance had agreed to have the First aHUS Awareness Day on 24th September 2015. The…
For aHUS -Good will come together
The third aHUS alliance affiliates meeting was held on 28 June 2015 , the day after the second UK aHUS…
From aHUS conference attendee to presenter
The journey of the Reluctant Advocate moves along in 2015. Just after the Paris meeting of the alliance I was contacted…
YOU ARE NOT ALONE, WE CAN FIND A WAY
Along with the simple messages "you are not alone" and "we can find a way" on Rare Disease Day 2019 The Global aHUS…
A Journey for Life
Another chapter from the Reluctant Advocate From its beginning aHUSUK had not been a fundraiser. We had always told people who…
Iowa and Paris in a week- jump for joy
A big step in the Reluctant Advocate's journey. As previously pointed out aHUSUK outreach was extending due in the main to…
Nice decision just world class
More from the reluctant advocate. The July meeting of NICE left us worried. The meeting had been held on 23rd July…
Finding Baby Bodmer- Learning about aHUS
Another pathway for the reluctant advocate. All aHUS Patients and their families have had their own aHUS experience. When it hit…
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