Just how many aHUS patients are there?
Rare Disease Day 2017 is over , the aHUS Global Video ( see here) was a tremendous success and, as has…
From Russia : Research and Cure!
Today the world will be celebrating the 10th edition of Rare Disease Day. This time, the event's main topic is "Research".…
The aHUS Global Video on Rare Disease Day 2017
It is Rare Disease Day 2017 . The video that the global aHUS community has been contributing to has been released…
The sum of aHUS Research provides better patient outcomes.
aHUS Research is important to the aHUS alliance. In a newsletter from i -ORD , the Indian Organisation for Rare Disease,…
AHUS alliance four years on from Barcelona
On 16 February 2013 representatives from six European aHUS patient organisations met in Barcelona and decided to create an aHUS alliance…
A Rare One – aHUS Certainly is! But you are not alone…
Here is one from the archives. A song specially written for Rare Disease Day 2012 as part of aHUS community contribution…
(archived 2019) -aHUS Alliance – Press Kit
Patients sharing their rare disease journey help bring new levels of understanding to researchers, industry, and the general public. Whether…
New Alliance Logo
When the aHUS Alliance was formed, a logo was designed and used. Over the months however, the need was felt to make…
The problem of aHUS in South Africa
Despite all its history South Africa is still classified by the UN as a developing nation. By 2015 it had the…
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