aHUS Awareness Day
aHUS AWARENESS DAY 24 September – an annual day to highlight the issues, challenges, and remarkable individuals within the aHUS community…
2025 aHUS Awareness Day
Join the global effort to raise awareness of atypical HUS! Since 2015, the aHUS Alliance Global Action team has led an…
What’s New in aHUS Research: Summer 2025
The aHUS Alliance Global Action team remains strong advocates for those affected by the rare disease atypical HUS, and proudly partners…
Pregnancy Associated TMA: a Start to Nomenclature Revision
It’s amazing how quickly medicine advances. For patients with some diagnoses, it seems like aspects such as new treatments or ‘standard…
New Canadian Expert Center for Complement-Mediated Rare Diseases
Launch of a Canadian Expert Center for Complement-Mediated Rare Diseases (CHU Sainte-Justine Centre d'expertise sur les maladies rares médiées par le…
PNH Ve aHÜS İle Mücadele Derneği̇n’den Haberler
PNH VE aHÜS İLE MÜCADELE DERNEĞİN’DEN HABERLER Derneğimiz tarafında ilk defa gerçekleştirilen toplantı organizasyonu, İstanbulÜniversitesi Tıp Fakültesi Salonlarında, 15 Şubat 2025…
aHUS Nomenclature: Bridges to the Future
Scientific advancements in the last decade have yielded promising avenues on multiple fronts, including those related to atypical HUS and other…
Balancing the Family Table: Challenges of Serving Up Kidney-Friendly Recipes
The Struggle of Meal Planning in Families with a Kidney Patient When a family member has a rare kidney disease, meal…
Atypical HUS Research: Feb 2025 Roundup
Since its inception in 2008, and celebrated annually on the last day of February, world Rare Disease Day has been an…
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