What’s New in aHUS Research: Summer 2025
The aHUS Alliance Global Action team remains strong advocates for those affected by the rare disease atypical HUS, and proudly partners…
The aHUS Alliance Global Action team remains strong advocates for those affected by the rare disease atypical HUS, and proudly partners…
It’s amazing how quickly medicine advances. For patients with some diagnoses, it seems like aspects such as new treatments or ‘standard…
Launch of a Canadian Expert Center for Complement-Mediated Rare Diseases (CHU Sainte-Justine Centre d'expertise sur les maladies rares médiées par le…
PNH VE aHÜS İLE MÜCADELE DERNEĞİN’DEN HABERLER Derneğimiz tarafında ilk defa gerçekleştirilen toplantı organizasyonu, İstanbulÜniversitesi Tıp Fakültesi Salonlarında, 15 Şubat 2025…
Scientific advancements in the last decade have yielded promising avenues on multiple fronts, including those related to atypical HUS and other…
The Struggle of Meal Planning in Families with a Kidney Patient When a family member has a rare kidney disease, meal…
Since its inception in 2008, and celebrated annually on the last day of February, world Rare Disease Day has been an…
It’s largely wishful thinking that an illness can become ‘extinct’ across the human population, as evidenced by the resurgence of diseases…
It’s largely wishful thinking that an illness can become ‘extinct’ across the human population, as evidenced by the resurgence of diseases…