Since You Asked: aHUS NOMENCLATURE
The topic of ‘changing the name of aHUS’ crops up regularly, so since people keep asking here are details which might…
Rare Disease Day 2026: Many Voices, One Global Movement
Rare Disease Day 2026: Many Voices, One Global Movement Since 2015, the aHUS Alliance Global Action team has been right there…
The Hidden Burdens: Living with Atypical HUS
Hidden Burdens: Living with aHUS When most people hear about a rare disease diagnosis they think primarily about medical challenges, but…
aHUS Global Advocate: Dec 2025 Newsletter
From start to finish it’s been a busy year in the global ‘aHUS space’ yet before we say hello to 2026…
What’s New in aHUS Research – Dec 2025 Edition
Keeping track of medical advancements in the rare disease space is challenging, but for those interested in atypical HUS the aHUS…
From aHUS Ashes: Rise of the Phoenix
Three journeys - among so many - lives transformed by one of the world's rarest diseases When atypical Hemolytic Uremic Syndrome…
Hope Emerges for aHUS Patients in India
Hope Emerges for India's aHUS Patients After Years of Struggle After years of waiting in the shadows of India's healthcare system,…
aHUS Alliance Global Action – Partners in Advocacy
How Global aHUS Advocacy Strengthens Support for Patients, Families, and the Medical Community in Nations around the World Around the world,…
Groundbreaking: USA News about Novartis, Roche & AstraZeneca
Some in the USA rare disease community were wondering how this scenario would unfold - now we know. Well, at least…
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