Can aHUS treatment be affordable for all?
A very important topic for many aHUS patients around the world with an unmet need. Patients have included the topic in…
A very important topic for many aHUS patients around the world with an unmet need. Patients have included the topic in…
Let us kick off the responses to the RDD2022 Video with a couple of questions about the characteristics of aHUS patients.…
Last summer, aHUS alliance’s Twitter Account featured the plight of a patient who, after a week in hospital, had been found…
The second article in the series about the aHUS Diagnosis Process has been published on the website today. Research made possible…
If asked by health policy decision makers, and with a 500 words limit, how would you answer the question "how does…
OK, so HUS is caused by e.coli toxins and aHUS results from Complement dysregulation. Both are thrombotic microangiopathies. HUS is…
Ravulizumab is becoming a treatment of choice for aHUS in countries where access is funded. Though eculizumab will still have a…
In Article 462 notice was given of a study to help USA rare disease patients in general. and aHUS patients in…
Article No. 457 Yet another article about the outcome of withdrawal of eculizumab treatment has appeared. It is not about a…