aHUS project for Rare Disease Day 2020
Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?
2019 more answers to questions
Article No 306 20 December 2019 If you have genetic mutations in your Complement and/or in related components in your blood…
Jules Bordet’s “Alexine”
Article No. 305 18 December 2019 Before 2019 comes to a close the opportunity is taken to acknowledge the work…
What do you call it?
Article No. 296 13 November 2019 A while back, a blog was published on this website titled “A rose by…
ASN, aHUS and the sisters from Missouri
Kidney Week 2019 is currently in progress. The American Society of Nephrology’s annual event is being held in Washington DC and…
10/18/19- FDA DECIDES
Today is significant for everyone with aHUS. Today the US Food & Drugs Administration ( FDA ) announced its decision on…
Small Molecule Factor D Inhibitors – Right for aHUS?
Out of more than 7000 rare diseases, only an estimated 5% have an approved treatment or therapy (Rare Disease Day, FAQs).…
The right choice -Pregnancy and aHUS
It is reckoned that 1 in 25000 pregnancies are complicated by thrombotic microangiopathy (TMA). That is 40 in a million pregnancies.…
aHUS Day 2019
2019 aHUS Awareness Day, an overview of the 5th annual 24 Sept campaign to raise awareness for the ultra rare disease atypical HUS.
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