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Read more about the article Spotlight on Ravulizumab 5- Affordable?

Spotlight on Ravulizumab 5- Affordable?

  • Post author:ahusalliance
  • Post published:February 23, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No 323 23 February 2020 Although precautions are needed in its use, there is evidence that Ravulizumab, like its predecessor…

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Read more about the article The study of genetics and aHUS

The study of genetics and aHUS

  • Post author:ahusalliance
  • Post published:February 15, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No. 319 14 February 2020 The study of genetics really began over 150 years ago when an Augustine Monk called…

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Read more about the article Transitioning Teens to Adult Nephrology Care

Transitioning Teens to Adult Nephrology Care

  • Post author:ahusalliance
  • Post published:January 5, 2020
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

As children with kidney disease grow to become adolescents, their medical care often changes from a pediatric to adult nephrology care setting - what common issues for teen patients surround this transition? A look at social, emotional, and medical aspects.

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Read more about the article aHUS project for Rare Disease Day 2020

aHUS project for Rare Disease Day 2020

  • Post author:ahusalliance
  • Post published:January 2, 2020
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?

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Read more about the article 2019 more answers to questions

2019 more answers to questions

  • Post author:ahusalliance
  • Post published:December 20, 2019
  • Post category:Featured
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Article No 306 20 December 2019 If you have genetic mutations in your Complement and/or  in related components in your blood…

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Read more about the article Jules Bordet’s “Alexine”

Jules Bordet’s “Alexine”

  • Post author:ahusalliance
  • Post published:December 18, 2019
  • Post category:Featured
  • Post comments:0 Comments

Article No. 305 18 December 2019   Before 2019 comes to a close the opportunity is taken to acknowledge the work…

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Read more about the article What do you call it?

What do you call it?

  • Post author:ahusalliance
  • Post published:November 13, 2019
  • Post category:Featured
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Article No. 296 13 November 2019   A while back, a blog was published on this website titled “A rose  by…

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Read more about the article ASN,  aHUS and the sisters from Missouri

ASN, aHUS and the sisters from Missouri

  • Post author:ahusalliance
  • Post published:November 8, 2019
  • Post category:Featured
  • Post comments:0 Comments

Kidney Week 2019 is currently in progress. The American Society of Nephrology’s  annual event is being held in Washington DC and…

Continue ReadingASN, aHUS and the sisters from Missouri
Read more about the article 10/18/19- FDA DECIDES

10/18/19- FDA DECIDES

  • Post author:ahusalliance
  • Post published:October 18, 2019
  • Post category:Featured
  • Post comments:0 Comments

Today is significant for everyone with aHUS. Today the US Food & Drugs Administration ( FDA ) announced its decision on…

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