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Read more about the article Mental Health & COVID-19

Mental Health & COVID-19

  • Post author:ahusalliance
  • Post published:April 10, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No. 338 10 April 2020   Mental Health admist COVID-19     In challenging times, circumstances may find you feeling…

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Read more about the article aHUS Registry: SAB Summary for Dec 2019

aHUS Registry: SAB Summary for Dec 2019

  • Post author:ahusalliance
  • Post published:April 2, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No. 337 2 April 2020 When news about the rare disease ‘atypical hemolytic uremic syndrome’ (atypical HUS) appears in medical…

Continue ReadingaHUS Registry: SAB Summary for Dec 2019
Read more about the article Atypical HUS & COVID-19

Atypical HUS & COVID-19

  • Post author:ahusalliance
  • Post published:March 30, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No 336 30 March 2020     Atypical HUS & COVID-19    Resources for the global aHUS Community   The aHUS…

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Read more about the article aHUS TRIALS WATCH 10

aHUS TRIALS WATCH 10

  • Post author:ahusalliance
  • Post published:March 8, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No. 331 8 March 2020 During his talk about potential complement inhibitors, Dr Richard Smith mentioned a ClinicalTrials.gov clinical trial…

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Read more about the article Spotlight on Ravulizumab 5- Affordable?

Spotlight on Ravulizumab 5- Affordable?

  • Post author:ahusalliance
  • Post published:February 23, 2020
  • Post category:Featured
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Article No 323 23 February 2020 Although precautions are needed in its use, there is evidence that Ravulizumab, like its predecessor…

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Read more about the article The study of genetics and aHUS

The study of genetics and aHUS

  • Post author:ahusalliance
  • Post published:February 15, 2020
  • Post category:Featured
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Article No. 319 14 February 2020 The study of genetics really began over 150 years ago when an Augustine Monk called…

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Read more about the article Transitioning Teens to Adult Nephrology Care

Transitioning Teens to Adult Nephrology Care

  • Post author:ahusalliance
  • Post published:January 5, 2020
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

As children with kidney disease grow to become adolescents, their medical care often changes from a pediatric to adult nephrology care setting - what common issues for teen patients surround this transition? A look at social, emotional, and medical aspects.

Continue ReadingTransitioning Teens to Adult Nephrology Care
Read more about the article aHUS project for Rare Disease Day 2020

aHUS project for Rare Disease Day 2020

  • Post author:ahusalliance
  • Post published:January 2, 2020
  • Post category:Featured
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Atypical HUS: 2020 Rare Disease Day project by the aHUS Alliance. What do aHUS patients & family caregivers ‘see’ as needs for improvement or envision as future advancements for aHUS through 2020?

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Read more about the article 2019 more answers to questions

2019 more answers to questions

  • Post author:ahusalliance
  • Post published:December 20, 2019
  • Post category:Featured
  • Post comments:0 Comments

Article No 306 20 December 2019 If you have genetic mutations in your Complement and/or  in related components in your blood…

Continue Reading2019 more answers to questions
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