Uncategorized Archives - Page 10 of 24

The aHUS diagnosis challenge

Post author:ahusalliance
Post published:September 3, 2020
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Article No. 374 3 September 2020 For most aHUS patients a diagnosis of aHUS was hard to come by. For a…

Attaining aHUS wellness and well being

Post author:ahusalliance
Post published:September 2, 2020
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Article No 373 2 September 2020 The theme for aHUS awareness day this year is wellness and well-being. Two words which…

Think aHUS 60k this coming awareness day

Post author:ahusalliance
Post published:September 1, 2020
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Article No. 372 1 September 2020 One thing is certain, no one knows how many aHUS patients there are in the…

Your donation support means a lot.

Post author:ahusalliance
Post published:August 24, 2020
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Article No 371 24 August 2020 Click on image above to go to our PayPal Giving page to make a…

Like an Agatha Christie Story!

Post author:ahusalliance
Post published:August 13, 2020
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Article No. 370 13 August 2020 Early this year, soon after it had completed its Rare Disease Day activities and COVID…

It’s not about My Rare Disease

Post author:ahusalliance
Post published:August 10, 2020
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Support for rare disease patients and their families - what does that look like, and how does it address their needs? The aHUS Alliance looks behind the medical issues of living with a rare disease to focus on the many factors involved with the struggle to live a meaningful life centered on wellness.