Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. "What is a Centre of Excellence?" lacks clarity, and is a concern of patients, families, and advocates. On behalf of atypical HUS advocates, the aHUS Alliance toured EU centers of aHUS expertise and research in July 2018.
Dr Errol Gottlich and Professor Mignon McCulloch Resilience, fortitude and determination. These characteristics describe the South African doctor treating patients within a complex and changing…
Earlier this year the alliance began a watch on trials announced which relate to treatment of aHUS. Click here for the…
Atypical HUS is a very rare and complex disease. We thank those who collaborate on global aHUS research efforts, and extend…
We welcome the aHUS community in Poland as the newest of aHUS patient organizations uniting with other nations under…
The 3rd international aHUS Awareness Day is just 2 months away. The world will join together on…
What does the term ‘wellness’ mean if you’re a patient with a very rare disease or chronic illness? At…
Thrombotic Microangiopathy Symposium: Through the Lens of aHUS 24 August 2017 in Boston Post-Event Update: LIVE BLOG: At…
Many people with chronic kidney disease experience sleep disturbances, apparently affecting patients of all ages and many clinical subtypes. Here we present a curated list of information about sleep disorders and kidney disease, providing excerpts to provide an overview of how sleep disorders may have potential to impact atypical HUS patients of various ages and with varied health histories.