aHUS Trials Watch 2
Earlier this year the alliance began a watch on trials announced which relate to treatment of aHUS. Click here for the…
aHUS Clinicians & Investigators
Atypical HUS is a very rare and complex disease. We thank those who collaborate on global aHUS research efforts, and extend…
aHUS in Poland – United in Advocacy
We welcome the aHUS community in Poland as the newest of aHUS patient organizations uniting with other nations under…
aHUS Awareness Day 2017 – Global Video Project
The 3rd international aHUS Awareness Day is just 2 months away. The world will join together on…
How Do You Define Wellness if You’re Living with a Rare Disease or Chronic Illness?
What does the term ‘wellness’ mean if you’re a patient with a very rare disease or chronic illness? At…
Thrombotic Microangiopathy Symposium in Boston – 24 Aug 2017
Thrombotic Microangiopathy Symposium: Through the Lens of aHUS 24 August 2017 in Boston Post-Event Update: LIVE BLOG: At…
Sleep Disturbances and Chronic Kidney Disease
Many people with chronic kidney disease experience sleep disturbances, apparently affecting patients of all ages and many clinical subtypes. Here we present a curated list of information about sleep disorders and kidney disease, providing excerpts to provide an overview of how sleep disorders may have potential to impact atypical HUS patients of various ages and with varied health histories.
Research & Education: Keys to aHUS Answers
Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical…
Global Videos about aHUS
The aHUS alliance is made up of affiliated aHUS organisations from around the world, which are in constant contact, and collaboration,…