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aHUS is….

Article No. 345 20 May 2020 COVID 19 lockdown does seem to give more time to think about things, so the question "What is aHUS?" has been pondered to fill…

Thrombotic Microangiopathy & Precision Medicine

Article No. 342 6 May 2020 Thrombotic Microangiopathy & Precision Medicine What’s to be learned from the Pandemic? At various times in history, medical science has been catapulted…

Transcript: aHUS & COVID-19 Webinar

Article No. 341 27 April 2020 When news about the rare disease ‘atypical hemolytic uremic syndrome’ (atypical HUS) appears in medical journals or social media, the aHUS Alliance seeks to…

aHUS & COVID-19: a Resource Page

As COVID-19 research, vaccines & availability, and national/regional response vary greatly by day and location, aHUS Alliance Global Action reminds you to check with your medical team for advice and…

How are you doing? (1)- Patient Reported Outcomes

Article No 326 5 March 2020 Medical research depends a lot on the collection of clinical data about patients from blood and other physical tests and measures to determine the …

Atypical HUS – RESOURCES 2020 version

Atypical HUS - RESOURCES About aHUS - General Info Info Centre Know aHUS: Know US aHUS PRESS KIT Image Gallery: Atypical HUS info & advocacy Atypical HUS 1.0 - to…

Global aHUS Registry: What’s it all About?

An article on FAQ regarding the aHUS global registry, including information gathered by atypical HUS patient advocates who represent the patient voice at the registry’s Scientific Advisory Board meetings.

Transitioning Teens to Adult Nephrology Care

As children with kidney disease grow to become adolescents, their medical care often changes from a pediatric to adult nephrology care setting – what common issues for teen patients surround this transition? A look at social, emotional, and medical aspects.