Although people’s experiences differ both treatment and long term effects of aHUS can be detected by patients. Patients have asked : Can the side effects of treatment using a complement…
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All aHUS patients know that when on complement inhibitor treatment they are at risk of meningococcal infection. Do they? Of course, they are told about it before they get treatment.…
Jump to Section: About aHUS | Special Events | Clinical Information | Networks and Support | Patient Materials (to Print & Share) |aHUS Global Advocate: NEWSLETTER |aHUS alliance Global Action…
Listening to some aHUS people on social media there is a sense that all are not satisfied with what is happening to them healthwise . This is what underpins two…
On February 28, 2023, the world will join together to raise awareness for rare diseases like atypical HUS. Recognized annually on the last day of February, Rare Disease Day encourages…
It is now over two years ago that Global Action began a major study of the aHUS Diagnosis Process, it is well over a year ago since the first report…
So adverse events are being reported. In USA over 4500 per year on average for eculizumab are reported to the FDA and just over 400 per year for ravulizumab. But…