The topic of ‘changing the name of aHUS’ crops up regularly, so since people keep asking here are details which might help to greater clarity and understanding to this topic.…
It’s amazing how quickly medicine advances. For patients with some diagnoses, it seems like aspects such as new treatments or ‘standard of care’ guidelines can’t move forward quickly enough. It’s…
Scientific advancements in the last decade have yielded promising avenues on multiple fronts, including those related to atypical HUS and other thrombotic microangiopathies. However we’ve now reached a point where…
Article No. 451 4 August 2021 Following on swiftly from Article No. 450 about the current babble of names and need to rename aHUS, aHUS alliance Global Action has been…
The name atypical hemolytic uremic syndrome is being replaced. Complement mediated thrombotic microangiopathy is becoming a popular choice. The first term is explicitly associated with kidney disease, the second term…
What’s new in aHUS research? Quite a bit, if you consider that over four dozen publications have just been added to our aHUS-specific ‘Virtual Library’. There’s a reason we’re so…
KDIGO met again to progress, through controversial means, knowledge of aHUS, or what ever it is called these days. There were 61 questions asked on 14 aspects of the so…
Until eight years ago China had no policy on the care of people with rare diseases. There were discussions about it . Then not only was rare defined but a…