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TMAs -How many are there?

The Primary aHUS community now understands that there is no accurate record of how many "aHUS" patients there are , but what about the number of people who have had…

Atypical HUS Research: Feb 2025 Roundup

Since its inception in 2008, and celebrated annually on the last day of February, world Rare Disease Day has been an opportunity to provide information and advocacy for and about…

Spotlight on aHUS Research: Dec 2024

It’s been a busy 4th quarter to round out 2024 for our aHUS Alliance Global Action team, and we’d like to share a few highlights from recent publications which have…

Change of name for aHUS news

What does the internet have to say about news of change of name for aHUS? Global Action asked it, has the name aHUS been changed. This is the answer it…

Out with old in with the new- not quite just yet

On the 10th anniversary of international aHUS awareness day it is timely to raise awareness that the old term aHUS is on its last legs and is to be replaced.…

What’s New in aHUS Research: SEPT 2024 Edition

Every year since the first aHUS Awareness Day on 24 Sept 2015 we’ve attempted to shine a spotlight on atypical HUS research to help add more visibility to (and for)…

Atypical HUS Facts: 2024 – Sept – 2025

2024 – SEPT – 2025 Atypical HUS: Fact Sheets & Research Atypical Hemolytic Uremic Syndrome – a Rare Disease Information and medical knowledge can change rapidly, which can be…

Atypical HUS and PNH: better together?

The diseases PNH and aHUS, although different, share features in common. Both are very rare, both are the result of uncontrolled complement and both can benefit from complement inhibitor treatment.…