A few days ago an article appeared in The Lancet which claims to be the largest real world analysis of complement inhibitor treatment of aHUS patients. It is a retrospective…
The renaming of Primary aHUS is inevitable. The experts have said so and the name change creep, albeit unofficial, is gathering pace. How do the new names for Primary aHUS…
The Primary aHUS community now understands that there is no accurate record of how many "aHUS" patients there are , but what about the number of people who have had…
Since its inception in 2008, and celebrated annually on the last day of February, world Rare Disease Day has been an opportunity to provide information and advocacy for and about…
It’s been a busy 4th quarter to round out 2024 for our aHUS Alliance Global Action team, and we’d like to share a few highlights from recent publications which have…
What does the internet have to say about news of change of name for aHUS? Global Action asked it, has the name aHUS been changed. This is the answer it…
On the 10th anniversary of international aHUS awareness day it is timely to raise awareness that the old term aHUS is on its last legs and is to be replaced.…
Every year since the first aHUS Awareness Day on 24 Sept 2015 we’ve attempted to shine a spotlight on atypical HUS research to help add more visibility to (and for)…