There are important publications about atypical HUS which people might miss given that key search terms may scan but miss the wide variations in the disease’s name and classification. It’s…
As an aHUS advocate you can often be surprised by events. Nearly three months ago I received an e mail inviting me to attend a conference about Complement Renal Disease.…
What’s new in 2022 regarding expansion in atypical HUS knowledge, and advancements for investigational drugs which may have potential as new aHUS therapeutic treatments? As with most matters, COVID-19 priorities…
Atypical HUS patients and family caregivers are direct consumers of medical information and research, as we have a vested interest in learning about a medical condition that affects us personally.…
Atypical HUS patients, family caregivers, and aHUS advocates are invited to attend a full day virtual meeting which will be held on Saturday, August 20th, 9:00am to 4:30pm EDT. It…
Here is a most unusual clinical article from earlier this year. In Thrombotic microangiopathies : An Illustrated review the Abou-Ismail Group explain TMAs using a series of illustrated images ,…
Six years ago, aHUS featured, along with another renal disease MPGN/C3G, in a controversies conference held by KDIGO (Kidney Disease Improving Global Outcomes, https://kdigo.org/ ) in Barcelona , Spain. Complement…
It’s been quite an unsettling end to the first half of 2022 within the atypical HUS community, as July 2022 has begun with an amalgam of issues centered on aHUS…