Until eight years ago China had no policy on the care of people with rare diseases. There were discussions about it . Then not only was rare defined but a…
From start to finish it’s been a busy year in the global ‘aHUS space’ yet before we say hello to 2026 issued our December 2025 edition of The aHUS Global…
2025 – SEPT – 2026 Atypical HUS: Fact Sheet Atypical Hemolytic Uremic Syndrome – a Rare Disease Information and medical knowledge can change rapidly, which can be problematic for…
It is said that thrombomodulin, or TM (AKA THBD) ,or CD141, plays only an indirect part in TMA (thrombotic microangiopathy) . TM is something which is ubiquitously spread on the…
2025 aHUS Awareness Day Project - Watch it at this Link https://bit.ly/2025aHUS24Sept aHUS AWARENESS DAY 24 September – an annual day to highlight the issues, challenges, and remarkable individuals within…
India has had its first patient conference. A summary of what was covered has been posted on line and reposted below. Its clear and concise style makes it easy to…
aHUS is a rare disease and rare disease patients are said to suffer from lack of awareness of their disease and isolation. How true is that of aHUS anymore? From…
A few days ago an article appeared in The Lancet which claims to be the largest real world analysis of complement inhibitor treatment of aHUS patients. It is a retrospective…