As any DGKE patient old enough or any family members know it is simply that : p.Trp322* (c966 D>A) is one at least 24 genetic mutations in one of the…
We’re pleased to announce that our latest edition of The aHUS Global Advocate newsletter has been released (Vol 14, August 2026) – our aHUS Awareness Day Special Edition. Where can…
There are two sets of patient groups affected by an aHUS name change. Those who have had it and already been diagnosed with it and those who have not yet…
aHUS Day will be on 24th September. It is for all the aHUS/cTMA community. The day has been set to raise awareness of the disease for 12 years now. The…
CAPS or Catastrophic Antiphospholipid Syndrome is an autoimmune and kidney disease which shares the same experience of thrombotic microangiopathy with aHUS/ cTMA. It is a rare life threatening diseases which…
aHUS Global Advocate Newsletter: May 2026 Edition Where can you get aHUS news that’s independent, objective, and focused on what’s important to the atypical HUS community? Here! We’re pleased to…
The name atypical hemolytic uremic syndrome is being replaced. Complement mediated thrombotic microangiopathy is becoming a popular choice. The first term is explicitly associated with kidney disease, the second term…
What’s new in aHUS research? Quite a bit, if you consider that over four dozen publications have just been added to our aHUS-specific ‘Virtual Library’. There’s a reason we’re so…