Six years ago, aHUS featured, along with another renal disease MPGN/C3G, in a controversies conference held by KDIGO (Kidney Disease Improving Global Outcomes, https://kdigo.org/ ) in Barcelona , Spain. Complement…
It’s been quite an unsettling end to the first half of 2022 within the atypical HUS community, as July 2022 has begun with an amalgam of issues centered on aHUS…
Atypical HUS Research, view over 900 aHUS-specific publications categorized by topic, compiled by the aHUS Alliance Global Action team.
This question about difference in disease triggers and treatments from Jeff did not feature in the RDD2022 video but was given as example in the invitation to participate in the…
Can MedEd Encourage Specialists to Form TMA Teams? Tiny clots which form in the body’s small blood vessels - in brief, that’s how thrombotic microangiopathy can damage vital organs such…
We marked aHUS Awareness Day (24 Sept) with our own advocacy-based research, releasing the 1st report of data and insights from aHUS Alliance Global Action team on the 2021 global…
Article No. 455 Dr Carla Nester is well known to the hundreds of aHUS families in the USA, and elsewhere, who have attended the famed biennial University of Iowa aHUS…
People with atypical HUS need urgent care during periods of disease activity, with treatment when needed for as long as needed. But how is such optimal care duration determined, and…