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Read more about the article aHUS Group Expectations for 2018 (continued)

aHUS Group Expectations for 2018 (continued)

  • Post author:ahusalliance
  • Post published:January 4, 2018
  • Post category:Featured
  • Post comments:0 Comments

Following aHUS India's response came two replies from The Netherlands and UK in Europe. Their expectations reflect a very different position…

Continue ReadingaHUS Group Expectations for 2018 (continued)
Read more about the article 4 Myths of Rare Disease Advocacy:  Part 2

4 Myths of Rare Disease Advocacy: Part 2

  • Post author:ahusalliance
  • Post published:December 26, 2017
  • Post category:Featured
  • Post comments:0 Comments

    The SECOND Article in a Four Part Series Rare Disease Advocacy:  Digging deeper into Common Misperceptions   Although there…

Continue Reading4 Myths of Rare Disease Advocacy: Part 2
Read more about the article 4 MYTHS of Rare Disease Advocacy

4 MYTHS of Rare Disease Advocacy

  • Post author:ahusalliance
  • Post published:December 20, 2017
  • Post category:Featured
  • Post comments:0 Comments

              The FIRST Article in a Four Part Series Rare Disease Advocacy:  Digging deeper into…

Continue Reading4 MYTHS of Rare Disease Advocacy
Read more about the article Atypical HUS – Rare Disease Day 2018

Atypical HUS – Rare Disease Day 2018

  • Post author:ahusalliance
  • Post published:December 1, 2017
  • Post category:Featured
  • Post comments:0 Comments

Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…

Continue ReadingAtypical HUS – Rare Disease Day 2018
Read more about the article Bucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG

Bucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG

  • Post author:ahusalliance
  • Post published:October 18, 2017
  • Post category:Featured
  • Post comments:0 Comments

International Nephrology Conference in BUCHAREST, Romania       17 & 18 Nov 2017     In the 1st conference of this type…

Continue ReadingBucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG
Read more about the article Thinking More About aHUS Today.

Thinking More About aHUS Today.

  • Post author:ahusalliance
  • Post published:September 24, 2017
  • Post category:Featured
  • Post comments:0 Comments

So aHUS is a genetic disease caused by the aHUS gene. Many people talk about "the aHUS gene" as though it…

Continue ReadingThinking More About aHUS Today.
Read more about the article aHUS Day video- Thoughts for Doctors

aHUS Day video- Thoughts for Doctors

  • Post author:ahusalliance
  • Post published:September 24, 2017
  • Post category:Featured
  • Post comments:0 Comments

  The aHUS alliance has put out its aHUS Awareness Day video for 2017. 72 patients, or family members, from 18…

Continue ReadingaHUS Day video- Thoughts for Doctors
Read more about the article Videos about aHUS which make you think differently

Videos about aHUS which make you think differently

  • Post author:ahusalliance
  • Post published:September 16, 2017
  • Post category:Featured
  • Post comments:0 Comments

Last month the aHUS alliance in partnership with Andrew Siedlecki , the USA National Coordinator for the aHUS Registry and other…

Continue ReadingVideos about aHUS which make you think differently
Read more about the article Research & Education: Keys to aHUS Answers

Research & Education: Keys to aHUS Answers

  • Post author:ahusalliance
  • Post published:April 6, 2017
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical…

Continue ReadingResearch & Education: Keys to aHUS Answers
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