New name plans what the aHUS community think about them
It is aHUS Awareness Day (it started in Tuvalu first!) . The theme for this Awareness Day is the plan for…
Cause v Effect- cTMA v aHUS
This image illustrates what the debate about renaming our disease is about- cause or effect. On the left is the complement…
A key issue why a name change will impact – Taylor and Len chat
Taylor Coffman and Len Woodward are two public aHUS patient advocates who write about aHUS and the patient experience of living…
New aHUS name it is like squaring the circle
Hey what's new? I have found out something new , did you know that aHUS is not the official name for…
Would experts compromise on a new name for aHUS (1)
Is there room at this stage for some compromise on a new name for aHUS? Would something like cTMA-HUS or even…
Have you voted yet?
Do you want the name aHUS to go? Because they are going to change it. Do you want to have your…
aHUS a Physician Patient Partnership or Not
Not many people will have heard of Donal O'Donoghue, He was a nephrologist from the North of England. He was a…
DGKE is NOT a cTMA , DGKE is its own COMMUNITY
As any DGKE patient old enough or any family members know it is simply that : p.Trp322* (c966 D>A) is one…
Primary and Secondary aHUS? Does it really matter?
The question should be why do some triggers kick off a complement only TMA ( Primary aHUS ) and yet can…
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