They “get it ” when they can get it.
Article No. 332 14 March 2020 At the present incidence levels reported worldwide, Coronavirus 2019 (COVID-19) still fits definition of a…
Eculizumab- safe or not?
aHUS patients and carers raised the research topic : "Can the side effects of treatment using a complement inhibitor be distinguished…
Anti-FHs aHUS – a Disease within a Disease
The aHUS Patient community is becoming familiar with the fact that an incident of aHUS is a chance event which requires…
An aHUS Trigger- S. Pneumoniae
Most of the aHUS community are aware that aHUS is the result of predisposing genetic factors ,some known some not yet…
aHUS Fatigue it matters to aHUS patients
aHUS is a disease in which oxygen carrying red blood cells are destroyed along with the kidneys too. The latter plays…
No one said it would be easy
The reluctant advocate story continues: aHUSUK had received the Evaluation Consideration Document the week before Rare Disease Day 2014 and we…
Transplant research answers that matter to aHUS patients
These days a kidney transplant may not feature much in the thoughts of new onset aHUS patients, most of them can…
Some side effect- Meningococcal infection!
The side effects of treatment and residual ailments of an aHUS onset featured highly by aHUS families in the contribution to…
Atypical HUS in the Netherlands
Atypical HUS in the Netherlands - An aHUS Alliance interview with the Dutch research and clinical teams at Radboudumc, to include the broad importance of their CUREiHUS study and its potential impact for patients and physicians world wide.
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