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Read more about the article They “get it ” when they can get it.

They “get it ” when they can get it.

  • Post author:ahusalliance
  • Post published:March 14, 2020
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 332 14 March 2020 At the present incidence levels reported worldwide, Coronavirus 2019 (COVID-19) still fits definition of a…

Continue ReadingThey “get it ” when they can get it.
Read more about the article Eculizumab- safe or not?

Eculizumab- safe or not?

  • Post author:ahusalliance
  • Post published:June 12, 2019
  • Post category:Featured
  • Post comments:0 Comments

aHUS patients and carers raised the research topic : "Can the side effects of treatment using a complement inhibitor be distinguished…

Continue ReadingEculizumab- safe or not?
Read more about the article Anti-FHs aHUS – a Disease within a Disease

Anti-FHs aHUS – a Disease within a Disease

  • Post author:ahusalliance
  • Post published:May 14, 2019
  • Post category:News
  • Post comments:0 Comments

The aHUS Patient community is becoming familiar with the fact that an incident of aHUS is a chance  event which requires…

Continue ReadingAnti-FHs aHUS – a Disease within a Disease
Read more about the article An aHUS Trigger- S. Pneumoniae

An aHUS Trigger- S. Pneumoniae

  • Post author:ahusalliance
  • Post published:March 25, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Most of the aHUS community are aware that aHUS is the result of predisposing genetic factors ,some known some not yet…

Continue ReadingAn aHUS Trigger- S. Pneumoniae
Read more about the article aHUS Fatigue it matters to aHUS patients

aHUS Fatigue it matters to aHUS patients

  • Post author:ahusalliance
  • Post published:March 6, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

aHUS is a disease in which oxygen carrying red blood cells are destroyed along with the kidneys too. The latter plays…

Continue ReadingaHUS Fatigue it matters to aHUS patients
Read more about the article No one said it would be easy

No one said it would be easy

  • Post author:ahusalliance
  • Post published:January 27, 2019
  • Post category:Featured
  • Post comments:0 Comments

The reluctant advocate story continues: aHUSUK had received the Evaluation Consideration Document the week before Rare Disease Day 2014 and we…

Continue ReadingNo one said it would be easy
Read more about the article Transplant research answers that matter to aHUS patients

Transplant research answers that matter to aHUS patients

  • Post author:ahusalliance
  • Post published:January 13, 2019
  • Post category:Featured
  • Post comments:0 Comments

These days a kidney transplant may not feature much in the thoughts of new onset aHUS patients, most of them can…

Continue ReadingTransplant research answers that matter to aHUS patients
Read more about the article Some side effect- Meningococcal infection!

Some side effect- Meningococcal infection!

  • Post author:ahusalliance
  • Post published:January 3, 2019
  • Post category:News
  • Post comments:0 Comments

The side effects of treatment and residual ailments of an  aHUS  onset featured highly by aHUS families in the contribution to…

Continue ReadingSome side effect- Meningococcal infection!
Read more about the article Atypical HUS in the Netherlands

Atypical HUS in the Netherlands

  • Post author:ahusalliance
  • Post published:November 18, 2018
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS in the Netherlands - An aHUS Alliance interview with the Dutch research and clinical teams at Radboudumc, to include the broad importance of their CUREiHUS study and its potential impact for patients and physicians world wide.

Continue ReadingAtypical HUS in the Netherlands
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