Skip to content
aHUS Alliance Action
  • Home
  • About aHUS Alliance
  • Articles
  • Info Centre
  • Patient Associations
  • Clinicians
  • Contact Us
  • Donate
  • Toggle website search
Search this website
Menu Close
  • Home
  • About aHUS Alliance
  • Articles
  • Info Centre
  • Patient Associations
  • Clinicians
  • Contact Us
  • Donate
  • Toggle website search

aHUS

  1. Home>
  2. News & Blogs>
  3. aHUS>
  4. Page 28
Read more about the article aHUS Patients have a value beyond the balance sheet

aHUS Patients have a value beyond the balance sheet

  • Post author:ahusalliance
  • Post published:February 6, 2018
  • Post category:Featured
  • Post comments:0 Comments

It was little known, but Alexion decided years ago that it would reinvest 40% of any of its profits from the…

Continue ReadingaHUS Patients have a value beyond the balance sheet
Read more about the article They do not get it , or do they?

They do not get it , or do they?

  • Post author:ahusalliance
  • Post published:February 1, 2018
  • Post category:Featured
  • Post comments:0 Comments

Everyone gets ill at some time don't they? Whether it is for example  a cold, stomach upset or measles, people know…

Continue ReadingThey do not get it , or do they?
Read more about the article Patients Included:  Reality or Unmet Goal? (#4: MYTHS of Rare Disease Advocacy)

Patients Included: Reality or Unmet Goal? (#4: MYTHS of Rare Disease Advocacy)

  • Post author:ahusalliance
  • Post published:January 16, 2018
  • Post category:Featured
  • Post comments:0 Comments

    The Last in the aHUS Alliance Four Part Series Patients Included: Reality or Unmet Goal? 4 MYTHS of Rare…

Continue ReadingPatients Included: Reality or Unmet Goal? (#4: MYTHS of Rare Disease Advocacy)
Read more about the article aHUS Group Expectations for 2018 (continued)

aHUS Group Expectations for 2018 (continued)

  • Post author:ahusalliance
  • Post published:January 4, 2018
  • Post category:Featured
  • Post comments:0 Comments

Following aHUS India's response came two replies from The Netherlands and UK in Europe. Their expectations reflect a very different position…

Continue ReadingaHUS Group Expectations for 2018 (continued)
Read more about the article Does the aHUS alliance add value?

Does the aHUS alliance add value?

  • Post author:ahusalliance
  • Post published:December 27, 2017
  • Post category:Featured
  • Post comments:0 Comments

Adding value in patient advocacy is obvious. Or is it? Those involved in patient advocacy constantly ask themselves “Am I achieving…

Continue ReadingDoes the aHUS alliance add value?
Read more about the article 4 Myths of Rare Disease Advocacy:  Part 2

4 Myths of Rare Disease Advocacy: Part 2

  • Post author:ahusalliance
  • Post published:December 26, 2017
  • Post category:Featured
  • Post comments:0 Comments

    The SECOND Article in a Four Part Series Rare Disease Advocacy:  Digging deeper into Common Misperceptions   Although there…

Continue Reading4 Myths of Rare Disease Advocacy: Part 2
Read more about the article Transplantation and aHUS – a top topic

Transplantation and aHUS – a top topic

  • Post author:ahusalliance
  • Post published:December 18, 2017
  • Post category:Featured
  • Post comments:0 Comments

Transplantation of aHUS dialysis patients is a priority and  top topic for the aHUS alliance. Transplantation of those with aHUS  has…

Continue ReadingTransplantation and aHUS – a top topic
Read more about the article Atypical HUS – Rare Disease Day 2018

Atypical HUS – Rare Disease Day 2018

  • Post author:ahusalliance
  • Post published:December 1, 2017
  • Post category:Featured
  • Post comments:0 Comments

Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…

Continue ReadingAtypical HUS – Rare Disease Day 2018
Read more about the article The aHUS Registry Explained (Part 1)

The aHUS Registry Explained (Part 1)

  • Post author:ahusalliance
  • Post published:November 27, 2017
  • Post category:Featured
  • Post comments:0 Comments

From its beginning the aHUS alliance’s website has featured articles about the aHUS Registry and the work it does (click here…

Continue ReadingThe aHUS Registry Explained (Part 1)
  • Go to the previous page
  • 1
  • …
  • 25
  • 26
  • 27
  • 28
  • 29
  • 30
  • 31
  • …
  • 33
  • Go to the next page

Quick Links

  • Home
  • About aHuS Alliance
  • Articles
  • Info Center
  • Patient Associations
  • Clinicians
  • Contact Us
  • Donate

Subscribe to our Newsletter

Get all the latest news from the aHUS world. For more information:

Email is required Email is not valid
Thanks for your subscription.
Failed to subscribe, please contact admin.

aHUS Keep Connected

Connect with us

Facebook-f Twitter Instagram Linkedin Envelope
Copyright 2025 - © aHUS alliance