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atypical hemolytic uremic syndrome

Home » atypical hemolytic uremic syndrome
Read more about the article Help needed to join the aHUS dots

Help needed to join the aHUS dots

  • Post author:ahusalliance
  • Post published:November 25, 2020
  • Post category:Featured
  • Post comments:0 Comments

Article No 395 25 November 2020 This was a call to action to the Global aHUS community.( Results to come) It…

Continue ReadingHelp needed to join the aHUS dots
Read more about the article aHUS is….

aHUS is….

  • Post author:ahusalliance
  • Post published:May 20, 2020
  • Post category:Featured
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Article No. 345 20 May 2020 COVID 19 lockdown does seem to give more time to think about things, so the…

Continue ReadingaHUS is….
Read more about the article Atypical HUS & School

Atypical HUS & School

  • Post author:ahusalliance
  • Post published:September 11, 2018
  • Post category:Uncategorized
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Atypical HUS and School: Information about teaching & learning. Learners of any age may be affected by chronic illness or a rare disease like aHUS. What schools and employers should know about people living with atypical hemolytic uremic syndrome (aHUS)

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Read more about the article aHUS and TMA Study Centers

aHUS and TMA Study Centers

  • Post author:ahusalliance
  • Post published:April 15, 2018
  • Post category:Featured
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    aHUS and TMA Study Centers An International List Compiled by the aHUS Alliance     Atypical HUS is difficult…

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Read more about the article Someone has to be the first

Someone has to be the first

  • Post author:ahusalliance
  • Post published:April 1, 2018
  • Post category:Featured
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Twenty years ago today, in 1998, an article appeared in Kidney International , the Journal of the International Society of Nephrology…

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Read more about the article The Many Faces of Atypical HUS:  Rare Disease Day 2018

The Many Faces of Atypical HUS: Rare Disease Day 2018

  • Post author:ahusalliance
  • Post published:March 5, 2018
  • Post category:Featured
  • Post comments:0 Comments

    What happens after the world annually marks Rare Disease Day on the last day of February? We carry on…

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Read more about the article Pathways of Patient Engagement – 4 Myths of Rare Disease Advocacy: Part 3

Pathways of Patient Engagement – 4 Myths of Rare Disease Advocacy: Part 3

  • Post author:ahusalliance
  • Post published:January 7, 2018
  • Post category:Featured
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        4 MYTHS of Rare Disease Advocacy:  Digging deeper into Common Misperceptions Pathways of Patient Engagement & Recruitment…

Continue ReadingPathways of Patient Engagement – 4 Myths of Rare Disease Advocacy: Part 3
Read more about the article 4 Myths of Rare Disease Advocacy:  Part 2

4 Myths of Rare Disease Advocacy: Part 2

  • Post author:ahusalliance
  • Post published:December 26, 2017
  • Post category:Featured
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    The SECOND Article in a Four Part Series Rare Disease Advocacy:  Digging deeper into Common Misperceptions   Although there…

Continue Reading4 Myths of Rare Disease Advocacy: Part 2
Read more about the article Atypical HUS – Rare Disease Day 2018

Atypical HUS – Rare Disease Day 2018

  • Post author:ahusalliance
  • Post published:December 1, 2017
  • Post category:Featured
  • Post comments:0 Comments

Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…

Continue ReadingAtypical HUS – Rare Disease Day 2018
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