Can an unknown aHUS susceptibility be passed on?
Usually inheritance questions about a HUS relate to genetic susceptibility mutations/variants/markers that are known. This one is different because it is…
aHUS survival and social support
The RDD2022 Video question by Heitor may be one which is not specific to aHUS, . It raises issues, which are…
Screening for aHUS at birth
Most babies are born healthy. Even those susceptible to aHUS due to genetic abnormalities are born healthy. Although it is rare,…
Can aHUS relapse in pregnancy?
Pregnancy is an important topic and has featured a lot on this website. Quite a few questions about it in the…
Strokes, DGKE , Sports & Recreation and aHUS questions
Three questions in the RDD22 video are each very specific but reflect the diverse impact of having had aHUS. Firstly one…
Questions about aHUS triggers
It is known that certain rare genetic variants, mutations, or markers, in components of the Complement System make some people susceptible…
Hormones and aHUS
Questions about hormones and aHUS in the RDD2022 video. It is a feature of aHUS that it becomes more common in…
YOU’VE GOT aHUS!
The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…
Help needed to join the aHUS dots
Article No 395 25 November 2020 This was a call to action to the Global aHUS community.( Results to come) It…
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